Entrepreneur
Neurosexism: how this app could bridge the gender gap in Parkinson’s disease
There’s a fundamental gap in knowledge in how Parkinson’s disease manifests and affects women – could this app close it?
Richelle Flanagan realised that something wasn’t quite right when she was writing in a client’s record card during a dietetic consultation and she noticed that her hands were shaking. She was three months pregnant at the time.
Shortly after the birth of her daughter she was diagnosed with young onset Parkinson’s disease (YOPD), a form of Parkinson’s which starts between the age of 21 and 40.
The condition affects the nervous system and the parts of the body controlled by the nerves and while it mostly includes the same symptoms of Parkinson’s disease – tremor, slowness of movement, muscle stiffness and balance problems – it impacts young people differently due to their unique life circumstances.
Richelle, for instance, noticed that her Parkinson’s symptoms were getting worse the week before her menstrual bleed.
“Other women with YOPD were saying the same thing. As a dietitian, I’ve always had an inquisitive mind, so I started looking at the research.”
She discovered that oestrogen receptors in the brain impact neurotransmitters like dopamine, which people with Parkinson’s lack. When oestrogen and progesterone levels drop before a woman’s menstrual bleeding, she found, dopamine levels are impacted, leading to a worsening of the Parkinson’s symptoms.
It was an aha moment which inspired her to conduct a global survey of women with Parkinson’s to better understand the changes.
“I surveyed around 240 women and 80 per cent of them reported the same issues I had around the menstrual cycle.
“However, more concerning was the lack of awareness or advice by neurologists on how to manage the symptoms – no one was talking about these things.”
The gender gap, Richelle realised, was not just limited to “bikini medicine”.
‘Neurosexism’
Although Parkinson’s disease seems to occur more commonly in men than women, it is estimated that 40 per cent of people living with the disease worldwide are women.
Data shows there is a fundamental gap in knowledge in how Parkinson’s disease manifests and affects women throughout their hormonal life cycle, resulting in unmet needs and adversely impacting women’s quality of life.
Current literature is scarce and conflicting with how the disease affects women. There are currently no official guidelines on how to manage Parkinson’s symptoms in this group.
“Lisa Mosconi, a famous neuroscientist, calls this neurosexism,” says Richelle. “It’s exactly what it is.”
In Parkinson’s, she goes on to explain, the main drug that people are given is levodopa, a medication which was developed before the FDA required drug makers to look at the differences between men and women.
“Although research shows that the drug is absorbed 25 per cent more in women, which can lead to more side effects, nothing is being done to tailor it to women’s differing metabolism.”
The gaps in research, coupled with the growing rates of Parkinson’s in women, prompted Richelle to take action.
As part of a DayOne digital hackathon, she proposed the development of a digital health app to help women track their Parkinson’s symptoms and My Moves Matter was born.
The app, which Richelle says has a “neuro-friendly” design, aims to help women understand the impact of their hormones on their symptoms, recognise patterns and make lasting positive changes. It includes a journal feature, which allows users to detail their symptoms, and is currently the only digital app in the world that tracks neurological symptoms across the menstrual cycle.
More importantly, the platform seeks to help women connect with each other, learn more about their condition and get involved in research.

“I firmly believe that there’s so much more that we could find answers to, through understanding women,” Richelle explains.
“We can unlock a lot of answers through our biology. Rather than seeing it as a woman’s thing, we should be seeing it as a whole plethora of research that could improve outcomes for people of all genders and sexes.”
Research is already underway to improve the lives of women living with Parkinson’s. Researchers at University College Cork (UCC) have collaborated with My Moves Matter on a world-first study that could completely transform how women manage the disease.
Participants will be able to log their symptoms on the app to collect data which it is hoped will lead to better patient-specific treatment and management of Parkinson’s disease.
“Many people think Parkinson’s disease only affects older white men,” Richelle says.
“The reality is that 40 per cent of people living with Parkinson’s are women and up to 30 per cent are under the age of 60. And while Parkinson’s is the fastest growing neurological condition in the world, there are no clinical guidelines for the management of symptoms worsening in relation to hormonal changes in women.
“My hope is that this study may help to lay the foundations for the development of such guidelines.”
Additionally, the founder says the findings could help develop My Moves Matter into a “personalised” support platform for people with Parkinson’s.
“Parkinson’s is a very disabling diagnosis. Our aim is to offer everyone the support they need, whether it’s related to diet, exercise or mental health, because there’s no cure for it, and there are no drugs to slow progression at the moment.
“I believe in empowering people and that’s what we ultimately want to do.”
The app can be found on mymovesmatter.com. You can participate in the study by filling out this survey.
Insight
Scaling startups risk increasing gender gaps, study finds
Rapidly scaling startups often make rushed hiring choices that disadvantage women, a recent study has found.
The findings draw on more than 31,000 new ventures founded in Sweden between 2004 and 2018.
Researchers at the Stockholm School of Economics report that in male-led startups, scaling reduces the odds of hiring a woman by about 18 per cent, and the odds of appointing a woman to a managerial post by 22 per cent.
Mohamed Genedy is co-author and postdoctoral fellow at the House of Innovation, Stockholm School of Economics.
Genedy said: “During those moments of rapid growth, even well-intentioned leaders can fall back on familiar stereotypes when assessing who they believe is best suited for the role.”
The patterns emerge even in Sweden, regarded as a highly gender-equal national context.
Founders with human resources-related education counteract these challenges.
In ventures led by founders with HR training, the odds of hiring a woman increase by more than 30 per cent, and the odds of appointing a woman to a managerial role increase by 14 per cent for the same level of growth.
Genedy said: “When founders have experience with structured hiring practices, the gender gaps shrink, and in some cases even reverse.
“This shows that getting the basics of HR right early on really pays off.
“When things start moving fast, founders with HR knowledge are less likely to rely on biased instincts and more likely to hire from a broader talent pool.”
Prior experience in companies with established HR practices also helps, though to a lesser degree.
It raises the likelihood of hiring women as ventures scale, but does not significantly affect managerial appointments.
The study additionally shows these patterns are not driven by founder gender alone.
Even solo female-led ventures display similar tendencies when growing rapidly, though to a somewhat lesser degree.
In female-dominated industries, rapid growth increases the hiring of women for regular roles but still reduces the likelihood that women are appointed to managerial positions.
“When scaling accelerates, cognitive bias kicks in for everyone. Female founders are not immune to these patterns,” said Genedy.
News
Midi Health closes US$100m Series D
News
Women’s telehealth company WISP acquires TBD Health
Women’s telehealth company Wisp has acquired TBD Health, a sexual health platform, in its first acquisition and expansion beyond direct-to-consumer care.
The deal adds TBD Health’s diagnostics infrastructure and hospital partnerships to Wisp’s platform, which the company says serves 1.8 million patients across the US.
Wisp, which describes itself as the largest women’s telehealth company in the US, said the acquisition marks a move into enterprise and hybrid care models that combine consumer-first digital care with hospital systems, enterprises and public health programmes.
TBD Health operates a sexual health and diagnostics platform across all 50 states, combining routine STI and HIV testing, virtual clinical support, and partnerships that help remove cost barriers for patients.
The company has established relationships with Mount Sinai Health System, San Francisco AIDS Foundation and Planned Parenthood Direct.
Monica Cepak, chief executive of Wisp, said: “This acquisition reflects where healthcare is going and where women have been left behind.
“TBD Health brings the infrastructure and partnerships that allow us to move into hybrid and enterprise care quickly, while staying true to Wisp’s patient-first approach.
“Together, we are making preventative care more accessible especially to women and integrating them into proven care models.”
The companies say gaps in access remain in sexual health and preventive care, particularly for women.
While women account for 19 per cent of new HIV diagnoses in the US, they remain underserved by existing prevention models, which have historically been designed and marketed for men.
Of the 2.4 million people eligible for PrEP, a medicine that reduces the risk of getting HIV, only around 25 per cent are currently enrolled.
Daphne Chen, co-founder of TBD Health, said: “By joining forces with Wisp, we can provide partners with a turnkey solution for PrEP along with sexual health diagnostics and care that integrates seamlessly into their existing workflows, ensuring no patient falls through the cracks.”
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