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NYU Langone Health’s institute receives US$12.5m in funding to address maternal mortality crisis

In 2021, Black pregnant women in the US died at a rate 2.6 times higher than their white counterparts, research shows

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NYU Langone Health’s Institute for Excellence in Health Equity has received US$12.5m for new digital intervention to address the “growing” maternal mortality crisis. 

The maternal mortality rate in the US, which has doubled in the past 20 years, is higher than in any other industrialised nation.

At least half of these deaths are preventable, and many are driven by systemic racism and social determinants of health such as poor access to quality and culturally appropriate care; gaps in insurance coverage before pregnancy; food insecurity, housing, and others, researchers say.

In 2021, Black pregnant women died at a rate 2.6 times higher than their white counterparts. Although Hispanic women experience relatively lower maternal mortality, this rate has jumped sharply in recent years, particularly during the pandemic.

To reverse this alarming trend, the National Heart, Lung, and Blood Institute (NHLBI), a division of the National Institutes of Health (NIH), created in 2021 the Maternal Health Community Implementation Project (MHCIP).

MHCIP aims to engage communities to implement interventions targeted at poor maternal outcomes such as hypertension, obesity and gestational diabetes in minoritised populations.

As part of the four coalitions supported by MHCIP, the Institute for Excellence in Health Equity was awarded US$12.5m over five years with Natasha Williams, associate professor in the department of population health, as principal investigator.

The programme will adapt and implement the Starting Early Program (StEP), an individual and group-based supportive nutrition and lifestyle counselling programme for pregnant women.

According to the Institute for Excellence in Health Equity, Williams will lead adaptation of StEP to meet the needs of diverse patient populations and to facilitate implementation in low-income practices that serve minoritised populations.

The newly adapted programme, called JustMothers, will be delivered digitally by community health workers using culturally relevant text messaging and video links. Community health workers are lay members of a community, who have similar ethnicity, language, socioeconomic status, and/or life experiences with the people they serve.

Williams said: “We are excited and honoured to offer this first-of-its kind digital intervention to Black and Hispanic pregnant women in New York City, where there is a high burden of maternal health inequities.

“This research programme enables us to move beyond descriptive accounts of health inequities, by implementing practical, and sustainable solutions to address the crisis of maternal morbidity.

“We are deeply appreciative to our community partners and people with lived experience who will play a critical role in not just our ability to engage with pregnant persons, but also in building lasting community engagement networks to achieve health equity.

“This grant will contribute to NYU Langone’s efforts to promote maternal health equity and health justice.”

The research team will evaluate adoption and dissemination of JustMothers across NYC Health + Hospitals, the largest municipal health system in the country, and the Family Health Centers at NYU Langone in Sunset Park and Flatbush in Brooklyn, New York.

Isaac Dapkins, chief medical officer of the Family Health Centers at NYU Langone, said: “The Family Health Centers at NYU Langone has a longstanding commitment to providing comprehensive women’s health services in Brooklyn.

“This proposal builds on that commitment to offer enhanced services to the pregnant people receiving care in Sunset Park, Brooklyn.”

Wendy Wilcox, chief women’s health officer at NYC Health + Hospitals, said: “Addressing social determinants of health, such as food insecurity and unstable housing, is an essential part of addressing social justice and advancing the health equity of our pregnant and postpartum patients.

“Nutrition is medicine, as it can help manage or even reverse chronic conditions like high blood pressure and diabetes. We are proud to serve all New Yorkers, and we look forward to partnering with NYU Langone Health on this important study.”

This first year of the award is dedicated to building the infrastructure to support the research. The investigators are planning to enrol 900 pregnant women, with the enrolment set to start by December.

Motherhood

Expectations about sleep affect postpartum sleep quality, study finds

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Pregnant women’s expectations about postpartum sleep may predict sleep quality after birth, outweighing prior sleep and psychiatric history, a study suggests.

The findings suggest attitudes and beliefs about sleep during pregnancy could be a modifiable risk factor for postpartum sleep concerns.

They also indicate that, among women expecting the poorest sleep, higher postpartum anxiety may further worsen sleep quality.

Sammy Dhaliwal, lead author is clinical health psychologist and research fellow in the department of obstetrics and gynaecology at the Perelman School of Medicine at the University of Pennsylvania.

Dhaliwal said: “Most pregnant women in our sample anticipated poor postpartum sleep before it occurred, and it was striking that those expectations predicted worse sleep outcomes even after accounting for factors such as prior sleep disorders, psychiatric history, and number of previous births.

“This suggests that attitudes and beliefs about sleep during pregnancy may represent a modifiable target for early intervention before postpartum sleep problems emerge.”

Sleep disturbance affects an estimated 60 to 80 per cent of postpartum women and is linked to a higher risk of depression and anxiety.

Researchers said it is often regarded as an expected part of life after childbirth rather than a health issue that may be addressed earlier.

The study enrolled 432 pregnant women at about 24 weeks of gestation, meaning around 24 weeks into pregnancy.

Participants completed measures of their expectations about postpartum sleep, current sleep quality using the Pittsburgh Sleep Quality Index, and mood using validated depression and anxiety scales.

Assessments were repeated at six, 12 and 24 weeks postpartum.

A subset of 49 women also wore wrist actigraphy devices at six to eight weeks postpartum.

Actigraphy uses a wearable device, similar to a watch, to estimate sleep and wake patterns based on movement.

The results showed that 70 per cent of pregnant women, or 301 of 432 participants, expected poor sleep in the postpartum period.

Researchers found that predicted sleep disruption during pregnancy was a significant predictor of postpartum sleep concerns.

Among first-time pregnant women without prior health concerns, those who expected greater sleep disturbance had significantly more disrupted sleep after birth, measured by both actigraphy and self-report.

Among women who expected the worst sleep quality, higher postpartum anxiety significantly worsened both measured sleep and self-reported sleep, independent of anxiety levels during pregnancy.

Dhaliwal said the findings point to two possible areas for intervention: addressing sleep-related beliefs during pregnancy and treating postpartum anxiety.

Dhaliwal said: “Postpartum sleep disruption is often treated only after problems develop, but our findings suggest there may be an opportunity to intervene earlier during pregnancy.

“Addressing sleep-related beliefs and postpartum anxiety during prenatal and postpartum care may help improve sleep and emotional well-being in new mothers.”

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Motherhood

Natural birth pressure harming new mothers’ mental health, research finds

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Pressure to have a natural birth can cause lasting psychological harm when labour does not go to plan, new research shows.

The study found that the messages women receive during pregnancy are directly linked to the shame and self-blame many feel when those expectations are not met.

For the first time, the research provides an explanation for why unmet birth expectations contribute to psychological harm.

Several women involved in the research said they felt they had not given birth “properly”, even when medical intervention had saved their lives.

Rebecca Matthews, lead author and PhD researcher at the University of Reading, said: “These women were not failed by their bodies, they were failed by the messages they were given.

“Birth trauma does not begin with birth. It begins in the ideology sold to women throughout pregnancy.

“For the first time we can explain precisely how, by showing how birth culture creates a moral standard for women that defines what a good mother does and then leaves them to blame themselves when birth does not match that.

“Until we reform the way we prepare women for birth, we will keep seeing the same devastating consequences for mothers and their babies.”

The researchers interviewed 21 first-time mothers in the UK whose births did not go as planned.

From NCT and hypnobirthing classes, to social media to midwives, the researchers heard how women are surrounded by messaging that frames natural, unmedicated vaginal birth as the “gold standard”, not just medically preferable, but as a mark of being a good mother and the first test of maternal worth.

Research shows around half of women report their birth differed significantly from their expectations, and for the women in this study, all of whom experienced exactly that, the psychological consequences were profound.

Women judged themselves against the internalised moral standard that this ideology had created.

The researchers are calling for antenatal education to stop treating one kind of birth as the goal and to present all birth outcomes as equally valid routes to motherhood.

They also call for better postnatal screening for women whose births did not go as expected, specifically targeting the shame, self-blame and identity disruption that this research identifies as mechanisms underlying birth trauma.

The findings align with and extend the conclusions of the Kirkup, Ockenden and Birth Trauma Inquiry reports, all of which documented how the institutional pursuit of “normal birth” contributed to preventable harm.

This research provides the first theoretical explanation of how that ideology generates individual psychological harm and points to antenatal messaging as the primary site of such preventable harm.

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Pregnancy

Wales becomes first UK nation to unite maternity care under a single digital record

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System C has completed the national rollout of BadgerNet Maternity across all seven NHS Health Boards in Wales. This is the first time any UK nation has unified its maternity care under a single digital record and patient-facing app.

With approximately 26,000 babies born annually in Wales, BadgerNet connects maternity information across organisational boundaries in the country.

Expectant parents can access their records, maternity appointments and key updates digitally through a single app, wherever they receive care while clinicians have secure access to the right information at the point of care.

The national three-year agreement across all Heath Boards replaces a patchwork of separate local systems and eliminates the need for paper hand-held notes.

Anthony Tracey is director of digital at Hywel Dda University Health Board, the final of the Welsh Health Boards to go live with BadgerNet.

He said: “The rollout of BadgerNet across Wales is a vitally important step forward in modernising our maternity services and providing a consistent service across the country.

“By giving expectant parents direct access to their information and enabling clinicians to share data more effectively, we are strengthening safety, transparency and consistency in maternity care nationwide.”

For expectant parents, the single digital maternity record transforms how they engage with their care.

Instead of carrying paper notes and repeating information at every appointment, parents can access key details, appointments and updates digitally, supporting more informed conversations and shared decision-making.

The result is greater transparency, fewer administrative frustrations and a more joined-up experience throughout pregnancy and into the postnatal period, regardless of which health board they fall under.

For clinicians and Health Boards, the joined-up approach reduces duplication and streamlines handovers across teams and sites. Information is digitally captured once and made available securely wherever it is needed, helping to minimise errors, reduce time spent tracking down notes and support more efficient multidisciplinary working.

At a national level, linking maternity data across Wales creates a foundation for safer, more consistent care.

Aggregated, standardised information enables earlier identification of trends and variation, supports evidence-based policy decisions and enhances long-term service planning.

With a comprehensive view of maternity activity and outcomes across the country, Wales is now better positioned to raise standards for parents, babies and families.

Guy Lucchi, managing director of healthcare at System C, added: “Delivering a truly national approach across all seven Health Boards is a significant achievement for Wales.

“One shared system means information flows with the patient, not the organisation.

“That reduces duplication, supports earlier identification of risk and frees up valuable clinical time.

“Crucially, linking maternity data at a national level provides powerful insight to drive improvement. Health Boards can benchmark, plan services with greater confidence and ensure resources are targeted where they are needed most, while expectant parents benefit from clearer communication and a more connected experience of care.”

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