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Why gestational diabetes underdiagnosis is a women’s health crisis

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By James Jackson, CEO at Digostics

Gestational diabetes (GDM) is one of the most under-recognised challenges in maternity care today.

Despite affecting around one in five pregnancies in the UK, GDM remains a blind spot in policy and practice, with devastating consequences for women and their children.

New research continues to expose the scale of the problem.

A recent NIHR-funded study published in Diabetic Medicine found that standard NHS testing methods miss over 50 per cent of cases.

Put simply: thousands of women each year go undiagnosed, untreated, and exposed to avoidable risks.

For a condition we know how to diagnose and manage, this represents a serious failure in women’s healthcare.

The human cost of missed diagnosis

When gestational diabetes is not picked up, the consequences are immediate and long-term.

During pregnancy, women face higher risks of preeclampsia, larger babies, emergency C-sections, and stillbirth. Babies are more likely to need neonatal intensive care due to breathing difficulties or low blood sugar.

The risks don’t end at birth.

Mothers who have had GDM are up to 50 per cent more likely to develop type 2 diabetes within 5–10 years. Their children also face an increased lifetime risk of obesity and diabetes.

These outcomes are not rare, nor are they inevitable. They are the product of a testing system that is not fit for purpose.

An unequal system

Current UK pathways rely on risk-factor–based screening rather than universal testing.

         James Jackson

This already puts women at a disadvantage compared with countries such as Spain, Italy, and many others, where all pregnant women are routinely screened.

But even within this narrower approach, the NHS faces a further problem: in-clinic oral glucose tolerance tests (OGTTs), used to test for GDM, are prone to delays in blood sample processing, leading to false negatives.

Research shows that when samples are processed correctly  diagnoses increase from 9 per cent to 22 per cent — more than double.

The burden of this diagnostic failure falls hardest on women from disadvantaged backgrounds.

Attending early-morning, hospital-based tests is more difficult for women juggling shift work, childcare, or long travel times.

Women from ethnic minority groups, who already face higher rates of maternal complications, are also more likely to be missed. In this way, testing failures are not just a clinical problem but a driver of health inequalities.

The case for innovation

This is where innovation can play a transformative role.

We have seen in other areas of healthcare — from remote monitoring to home blood pressure checks — how new approaches can increase accuracy, improve access, and reduce inequalities.

Gestational diabetes testing should be no different. Technologies such as at-home oral glucose tolerance tests (OGTTs) are designed to meet the same clinical standards as hospital testing, while overcoming the practical barriers of travel, fasting, and sample degradation.

By enabling women to test from home, results can be processed immediately and shared directly with care teams, reducing missed cases and ensuring timely diagnosis.

Early work with NHS Trusts has already shown that this model not only identifies more cases but also improves access for diverse patient groups, including those typically underserved.

From evidence to action

Despite clear data, progress has been slow. Part of the challenge is that more accurate testing uncovers more cases — and more cases mean more workload for already stretched maternity services.

But failing to diagnose does not make the problem go away; it only delays care and worsens outcomes.

In the long run, undiagnosed gestational diabetes costs the NHS more through emergency interventions, neonatal intensive care, later-life type 2 diabetes, and the ongoing workload and cost pressures this creates for primary care.

The evidence is clear. Now it must translate into policy. That means:

  • Recognising underdiagnosis as a patient safety issue on par with other maternity scandals.
  • Guaranteeing that all women offered testing receive accurate, reliable results, rather than being failed by flawed processes.
  • Supporting innovation that improves accuracy and equity, whether in the clinic or at home.
  • Embedding the patient voice in service design, especially from women in disadvantaged and minority communities most affected by current failures.

A call to prioritise women’s health

Gestational diabetes is not a niche concern; it is a mainstream women’s health issue with lifelong consequences.

Every undiagnosed case represents not just a missed number, but a mother at risk of preeclampsia or birth trauma, a baby at risk of intensive care, or a family facing preventable illness later in life.

As maternity services undergo yet another review, it is striking that the diagnostic gap in GDM remains so little discussed.

We cannot claim to be serious about women’s health while ignoring one of the most widespread and preventable sources of harm in pregnancy.

Innovation has a role to play — but innovation must be matched by policy will.

If we are to modernise maternity care, we must start by ensuring that every woman has access to accurate, timely, and equitable testing for gestational diabetes.

Because every mother deserves certainty. And every baby deserves the best start in life.

Pregnancy

Type 2 diabetes raising twice as fast in younger womem, research finds

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Type 2 diabetes diagnoses are rising twice as fast in women under 40 as in women over 40, new data shows.

Type 2 diabetes is a serious condition and can lead to complications such as heart attacks and strokes. When it develops in younger people, it can be more aggressive and have more severe and acute effects.

Diagnoses in women under 40 rose by 47 per cent between 2017/18 and 2023/24. By comparison, diagnoses rose by 22 per cent in women aged 40 to 79.

During the same period, type 2 diabetes diagnoses in men under 40 increased by 34 per cent.

Diabetes UK said it is concerned about the follow-up care offered to women who have had gestational diabetes, also known as GDM, which increases the risk of developing type 2 diabetes after pregnancy.

Gestational diabetes is high blood sugar that develops during pregnancy and usually goes away after birth, but it raises the risk of type 2 diabetes later.

Colette Marshall, chief executive at Diabetes UK, said: “These figures should be a wake-up call. Type 2 diabetes is rising twice as fast in younger women compared to older women, and a crucial opportunity for prevention is being missed. Every diagnosis is life-changing, but when it develops in younger people, type 2 diabetes is even more aggressive.

“Pregnancy shouldn’t be a pathway to ill health. Yet despite facing a much higher risk of type 2 diabetes, too many women with GDM receive little or no follow-up care after pregnancy.

“As the Government turns its Strategy into action, support for women who have had gestational diabetes must not be overlooked.”

Last year, the NHS published the first national GDM audit for England in 2024/25, which revealed inconsistencies in follow-up care.

Only 57 per cent of women with GDM received an annual HbA1c test, which should be offered to every woman with GDM.

An HbA1c test measures average blood sugar levels over the previous two to three months.

Only 4.5 per cent of women had received support through the NHS Diabetes Prevention Programme.

The report also found that 11 per cent of women developed prediabetes within five years of having GDM, while 15 per cent developed type 2 diabetes within 10 years.

Prediabetes means blood sugar levels are higher than normal and a person has a higher risk of developing type 2 diabetes.

A recent survey funded by Diabetes UK also found that more than a third of women with GDM felt abandoned by healthcare services after giving birth.

If you live in England and have had gestational diabetes, you can self-refer to the NHS Diabetes Prevention Programme, which supports people at risk of developing type 2 diabetes. If you live in Northern Ireland, Scotland or Wales, you can speak to your GP about support.

Diabetes UK has written to women’s health minister Baroness Merron calling for urgent improvements to postnatal support for those diagnosed with GDM during pregnancy.

GDM affects between 10 and 20 per cent of pregnant women, but Diabetes UK said cases have long been underreported and UK-wide data on the condition has not been readily available.

The charity said poor follow-up care for women who have had GDM may be contributing to rising rates of type 2 diabetes in younger women.

It is calling for consistent postnatal follow-ups for women after GDM, more referrals to the NHS Diabetes Prevention Programme, greater accountability for improvements in postnatal care, and action on inequalities affecting women from deprived and minority ethnic communities.

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Wales becomes first UK nation to unite maternity care under a single digital record

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System C has completed the national rollout of BadgerNet Maternity across all seven NHS Health Boards in Wales. This is the first time any UK nation has unified its maternity care under a single digital record and patient-facing app.

With approximately 26,000 babies born annually in Wales, BadgerNet connects maternity information across organisational boundaries in the country.

Expectant parents can access their records, maternity appointments and key updates digitally through a single app, wherever they receive care while clinicians have secure access to the right information at the point of care.

The national three-year agreement across all Heath Boards replaces a patchwork of separate local systems and eliminates the need for paper hand-held notes.

Anthony Tracey is director of digital at Hywel Dda University Health Board, the final of the Welsh Health Boards to go live with BadgerNet.

He said: “The rollout of BadgerNet across Wales is a vitally important step forward in modernising our maternity services and providing a consistent service across the country.

“By giving expectant parents direct access to their information and enabling clinicians to share data more effectively, we are strengthening safety, transparency and consistency in maternity care nationwide.”

For expectant parents, the single digital maternity record transforms how they engage with their care.

Instead of carrying paper notes and repeating information at every appointment, parents can access key details, appointments and updates digitally, supporting more informed conversations and shared decision-making.

The result is greater transparency, fewer administrative frustrations and a more joined-up experience throughout pregnancy and into the postnatal period, regardless of which health board they fall under.

For clinicians and Health Boards, the joined-up approach reduces duplication and streamlines handovers across teams and sites. Information is digitally captured once and made available securely wherever it is needed, helping to minimise errors, reduce time spent tracking down notes and support more efficient multidisciplinary working.

At a national level, linking maternity data across Wales creates a foundation for safer, more consistent care.

Aggregated, standardised information enables earlier identification of trends and variation, supports evidence-based policy decisions and enhances long-term service planning.

With a comprehensive view of maternity activity and outcomes across the country, Wales is now better positioned to raise standards for parents, babies and families.

Guy Lucchi, managing director of healthcare at System C, added: “Delivering a truly national approach across all seven Health Boards is a significant achievement for Wales.

“One shared system means information flows with the patient, not the organisation.

“That reduces duplication, supports earlier identification of risk and frees up valuable clinical time.

“Crucially, linking maternity data at a national level provides powerful insight to drive improvement. Health Boards can benchmark, plan services with greater confidence and ensure resources are targeted where they are needed most, while expectant parents benefit from clearer communication and a more connected experience of care.”

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Early birth safer in high blood pressure pregnancies – study

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Early birth may cut serious complications and stillbirth risk in high blood pressure pregnancies without increasing caesarean rates, a Cochrane review suggests.

Planned early birth after 34 weeks cut serious maternal complications by nearly half compared with watchful waiting, the findings suggest.

It also likely reduced the risk of stillbirth by about 75 per cent, although the authors said this should be interpreted with caution.

Catherine Cluver, senior author of the review and researcher at Stellenbosch University and Tygerberg Hospital, said: “These findings give clinicians and women clearer guidance about the timing of birth when high blood pressure develops in pregnancy.

“For women with pre-eclampsia in particular, the evidence supports offering planned early birth from 34 weeks, and no later than 37 weeks.”

This Cochrane review, led by King’s College London, pooled data from six randomised controlled trials involving 3,491 women.

The trials compared planned early birth after 34 weeks with watchful waiting in women with one or more hypertensive disorders of pregnancy.

Hypertensive disorders of pregnancy, including pre-eclampsia, gestational hypertension and chronic hypertension, are the second leading cause of maternal death globally.

For women with pre-eclampsia, early birth remains the only definitive treatment, as the condition is driven by the placenta and will only resolve once it is delivered.

The trials took place in the Netherlands, UK, US, India and Zambia.

The review found high-certainty evidence that serious maternal complications were nearly halved in women who had planned early birth compared with those managed with watchful waiting.

The finding on stillbirth was based on moderate-certainty evidence and was driven by a single trial in India and Zambia, where stillbirth rates are higher. No stillbirths were recorded in the high-income country trials.

The review also found that planned early birth likely does not increase neonatal unit admission, although this finding was also based on moderate-certainty evidence.

The authors said the maternal benefit held across both high- and low-income settings, suggesting early birth reduces complications even when women are already receiving appropriate monitoring and care.

Alice Beardmore-Gray, lead author of the review and obstetrician at King’s College London, said: “Judging when to offer birth is the question that we battle with clinically every day.”

The authors added that in two of the trials, more than half the women allocated to watchful waiting ended up needing emergency birth before 37 weeks.

They typically gave birth just three to five days later than women allocated to planned early birth and often experienced more complications.

Beardmore-Gray said: “A common misconception is that by waiting longer, mum and baby are gaining more time, but often what you are doing is just delaying an inevitable emergency birth, when both may be in a worse condition.”

The review found high-certainty evidence of no increased risk of caesarean section associated with planned early birth.

Beardmore-Gray said: “That is the first question anyone asks when you offer them an early induction: won’t it increase my risk of a C-section?

“Being able to clearly answer no is a really important piece of information to give women when counselling them about the timing of their birth.”

The authors said the timing of birth should take into account the woman’s preferences and the severity of her condition.

They said these findings are consistent with and reinforce current international guidelines, which recommend that all women with pre-eclampsia should be offered planned early birth no later than 37 weeks.

Women with gestational hypertension or chronic hypertension without severe features may choose to continue with careful monitoring, with planned early birth considered from 39 weeks onwards.

Further research is needed on longer-term outcomes for infants born late preterm and on the long-term cardiovascular health of mothers affected by hypertensive disorders of pregnancy.

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